The Pulmonary Fibrosis Foundation Patient Registry. Rationale, Design, and Methods

Author:

Wang Bonnie R.1,Edwards Rex2,Freiheit Elizabeth A.3,Ma Yicheng3,Burg Cindy4,de Andrade Joao5,Lancaster Lisa5,Lindell Kathleen6,Nathan Steven D.7,Raghu Ganesh8,Gibson Kevin6,Gulati Mridu9,Mason Wendi5,Noth Imre10,Schmidt Bill2,Spino Cathie3,Staszak Scott2,Stauffer Jack4,Wolters Paul J.11,Cosgrove Gregory P.2,Flaherty Kevin R.1

Affiliation:

1. Division of Pulmonary and Critical Care Medicine, Department of Internal Medicine, and

2. Pulmonary Fibrosis Foundation, Chicago, Illinois

3. Department of Biostatistics, University of Michigan, Ann Arbor, Michigan

4. Genentech, San Francisco, California

5. Division of Allergy, Pulmonary, and Critical Care Medicine, School of Medicine, Vanderbilt University, Nashville, Tennessee

6. Division of Pulmonary, Allergy, and Critical Care Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania

7. Inova Fairfax Hospital, Falls Church, Virginia

8. Division of Pulmonary, Critical Care and Sleep Medicine, University of Washington, Seattle, Washington

9. Division of Pulmonary, Critical Care and Sleep Medicine, Yale University, New Haven, Connecticut

10. Division of Pulmonary and Critical Care Medicine, University of Virginia, Charlottesville, Virginia; and

11. Division of Pulmonary, Critical Care, Allergy and Sleep Medicine, University of California, San Francisco, San Francisco, California

Publisher

American Thoracic Society

Subject

Pulmonary and Respiratory Medicine

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