Emotional journey of patients with specified intractable diseases in Japan
Author:
Affiliation:
1. Graduate School of Health Innovation, Kanagawa University of Human Services, Kawasaki City, Japan.
Publisher
International Research and Cooperation Association for Bio & Socio-Sciences Advancement (IRCA-BSSA)
Subject
General Medicine
Link
https://www.jstage.jst.go.jp/article/irdr/advpub/0/advpub_2023.01115/_pdf
Reference14 articles.
1. 1. Austin CP, Cutillo CM, Lau LPL, et al. Future of rare diseases research 2017-2027: An IRDiRC perspective. Clin Transl Sci. 2018; 11:21-27.
2. 2. Groft SC, Posada de la Paz M. Rare diseases: Joining mainstream research and treatment based on reliable epidemiological data. Adv Exp Med Biol. 2017; 1031:3-21.
3. 3. Schieppati A, Henter JI, Daina E, Aperia A. Why rare diseases are an important medical and social issue. Lancet. 2008; 371:2039-2041.
4. 4. Ministry of Health, Labour and Welfare. https://www.mhlw.go.jp/stf/seisakunitsuite/bunya/0000084783.html (accessed December 3, 2023). (in Japanese)
5. 5. Ministry of Health, Labor and Welfare, Health Service Bureau. Intractable disease. https://www.mhlw.go.jp/stf/seisakunitsuite/bunya/0000084783.html (accessed December 3, 2023). (in Japanese)
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