Assessment of health-related quality of life in patients with spina muscular atrophy in China
Author:
Affiliation:
1. China National Health Development Research Center; National Center for Drug and Technology Assessment, Beijing, China.
2. Vanke School of Public Health, Tsinghua University; Institute for Healthy China, Tsinghua University, Beijing, China.
Publisher
International Research and Cooperation Association for Bio & Socio-Sciences Advancement (IRCA-BSSA)
Subject
General Medicine
Link
https://www.jstage.jst.go.jp/article/irdr/11/4/11_2022.01094/_pdf
Reference17 articles.
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2. 2. López-Bastida J, Peña-Longobardo LM, Aranda-Reneo I, Tizzano E, Sefton M, Oliva-Moreno J. Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain. Orphanet J Rare Dis. 2017; 12:141.
3. 3. Peña-Longobardo LM, Aranda-Reneo I, Oliva-Moreno J, Litzkendorf S, Durand-Zaleski I, Tizzano E, López-Bastida J. The economic impact and health-related quality of life of spinal muscular atrophy. An analysis across Europe. Int J Environ Res Public Health. 2020; 17:5640.
4. 4. Landfeldt E, Edström J, Sejersen T, Tulinius M, Lochmüller H, Kirschner J. Quality of life of patients with spinal muscular atrophy: A systematic review. Eur J Paediatr Neurol. 2019; 23:347-356.
5. 5. Thimm A, Brakemeier S, Kizina K, Munoz Rosales J, Stolte B, Totzeck A, Deuschl C, Kleinschnitz C, Hagenacker T. Assessment of health-related quality of life in adult spinal muscular atrophy under nusinersen treatment-a pilot study. Front Neurol. 2022; 12:812063.
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