An update on China's national policies regarding rare diseases
Author:
Affiliation:
1. Biomedical Big Data Center, West China Hospital, Sichuan University, Chengdu, Sichuan, China.
2. Rare Diseases Center, West China Hospital, Sichuan University, Chengdu, Sichuan, China.
Publisher
International Research and Cooperation Association for Bio & Socio-Sciences Advancement (IRCA-BSSA)
Subject
General Medicine
Link
https://www.jstage.jst.go.jp/article/irdr/10/3/10_2021.01027/_pdf
Reference21 articles.
1. 1. Haendel M, Vasilevsky N, Unni D, et al. How many rare diseases are there? Nat Rev Drug Discov. 2020; 19:77-78.
2. 2. Guangming Daily. A series of policies benefit 20 million patients with rare diseases. https://news.gmw.cn/2019-03/02/content_32590501.htm (accessed November 30, 2020) (in Chinese).
3. 3. He JJ, Kang Q, Hu JH, Song PP, Jin CL. China has officially released its first national list of rare diseases. Intractable Rare Dis Res. 2018; 7:145-147.
4. 4. Xinhua News Agency. China Rare Disease Alliance established. http://www.xinhuanet.com/politics/2018-10/26/c_1123619519.htm (accessed December 2, 2020) (in Chinese).
5. 5. National Health Commission of the People's Republic of China. Notice of the General Office of the National Health Commission on the establishment of a National Network for Collaboration in Rare Disease Diagnosis and Treatment. http://www.nhc.gov.cn/yzygj/s7659/201902/3a8228589bf94e6d9356008763387cc4.shtml (accessed December 2, 2020) (in Chinese).
Cited by 8 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
1. Bridging the new drug access gap between China and the United States and its related policies;Frontiers in Pharmacology;2024-01-08
2. Release and impact of China's "Second List of Rare Diseases";Intractable & Rare Diseases Research;2023-11-30
3. Pharmacovigilance for rare diseases: a bibliometrics and knowledge-map analysis based on web of science;Orphanet Journal of Rare Diseases;2023-09-26
4. Knowledge and Attitudes of Clinical Trials among Patients with Rare Diseases and the Guardians in China;Therapeutic Innovation & Regulatory Science;2023-09-18
5. Policy analysis in the field of rare diseases in China: a combined study of content analysis and Bibliometrics analysis;Frontiers in Medicine;2023-05-05
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3