An update on China's national policies regarding rare diseases

Author:

Ying Zhiye1,Gong Li2,Li Chunyang1

Affiliation:

1. Biomedical Big Data Center, West China Hospital, Sichuan University, Chengdu, Sichuan, China.

2. Rare Diseases Center, West China Hospital, Sichuan University, Chengdu, Sichuan, China.

Publisher

International Research and Cooperation Association for Bio & Socio-Sciences Advancement (IRCA-BSSA)

Subject

General Medicine

Reference21 articles.

1. 1. Haendel M, Vasilevsky N, Unni D, et al. How many rare diseases are there? Nat Rev Drug Discov. 2020; 19:77-78.

2. 2. Guangming Daily. A series of policies benefit 20 million patients with rare diseases. https://news.gmw.cn/2019-03/02/content_32590501.htm (accessed November 30, 2020) (in Chinese).

3. 3. He JJ, Kang Q, Hu JH, Song PP, Jin CL. China has officially released its first national list of rare diseases. Intractable Rare Dis Res. 2018; 7:145-147.

4. 4. Xinhua News Agency. China Rare Disease Alliance established. http://www.xinhuanet.com/politics/2018-10/26/c_1123619519.htm (accessed December 2, 2020) (in Chinese).

5. 5. National Health Commission of the People's Republic of China. Notice of the General Office of the National Health Commission on the establishment of a National Network for Collaboration in Rare Disease Diagnosis and Treatment. http://www.nhc.gov.cn/yzygj/s7659/201902/3a8228589bf94e6d9356008763387cc4.shtml (accessed December 2, 2020) (in Chinese).

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