KOBIO, the First Web-based Korean Biologics Registry Operated With a Unified Platform Among Distinct Disease Entities

Author:

Kim Jinhyun1,Koh Jung Hee2,Choi Sung Jae3,Jeon Chan Hong4,Kwok Seung-Ki5,Kim Seong-Kyu6,Choi Chan-Bum7,Lee Jaejoon8,Lee Changhoon9,Nam Eon Jeong10,Park Yong-Beom11,Lee Shin-Seok12,Kim Tae-Hwan7,Park Sung-Hwan5,Koh Eun-Mi8,Yoo Dae-Hyun7,Song Yeong Wook13,Kim Hyoun-Ah14ORCID,Shin Kichul15ORCID,Choe Jung-Yoon6

Affiliation:

1. Department of Internal Medicine, Chungnam National University College of Medicine, Daejeon, Korea

2. Division of Rheumatology, Department of Internal Medicine, Bucheon St. Mary's Hospital, College of Medicine, The Catholic University of Korea, Seoul, Korea

3. Division of Rheumatology, Department of Internal Medicine, Korea University Ansan Hospital, Ansan, Korea

4. Division of Rheumatology, Department of Internal Medicine, Soonchunhyang University Bucheon Hospital, Bucheon, Korea

5. Division of Rheumatology, Department of Internal Medicine, Seoul St. Mary's Hospital, College of Medicine, The Catholic University of Korea, Seoul, Korea

6. Division of Rheumatology, Department of Internal Medicine, Daegu Catholic University School of Medicine, Daegu, Korea

7. Department of Rheumatology, Hanyang University Hospital for Rheumatic Diseases, Seoul, Korea

8. Department of Medicine, Samsung Medical Center, Sungkyunkwan University School of Medicine, Seoul, Korea

9. Department of Internal Medicine, Wonkwang University Hospital, Iksan, Korea

10. Department of Internal Medicine, Kyungpook National University School of Medicine, Daegu, Korea

11. Division of Rheumatology, Department of Internal Medicine, Yonsei University College of Medicine, Seoul, Korea

12. Department of Rheumatology, Chonnam National University Hospital, Gwangju, Korea

13. Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea

14. Department of Rheumatology, Ajou University School of Medicine, Suwon, Korea

15. Division of Rheumatology, Department of Internal Medicine, Seoul Metropolitan Government-Seoul National University Boramae Medical Center, Seoul, Korea

Publisher

Korean College of Rheumatology

Reference37 articles.

1. Trial designs using real‐world data: The changing landscape of the regulatory approval process

2. Real-World Evidence — What Is It and What Can It Tell Us?

3. Randomised controlled trials and population-based observational research: partners in the evolution of medical evidence

4. Gliklich RE, Dreyer NA, Leavy MB. Patient registries. In: Gliklich RE, Dreyer NA, Leavy MB, eds. Registries for evaluating patient outcomes: a user's guide. 3rd ed. Rockville (MD), Agency for Healthcare Research and Quality (US), 2014.

5. Biologics registers in RA: methodological aspects, current role and future applications

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