Family Caregivers’ Experiences of Caring for Patients with Heart Failure: A Qualitative Study

Abstract

Background: Heart failure (HF) is a global health concern. People living with the disease require continuous care and support, which is frequently provided by informal caregivers. Although HF caregivers occupy a key position in improving patients’ outcomes and reducing health-care costs, many of them experience adverse impacts on their physical and psychological health, which is largely unknown. Objective: The purpose of this study was to explore the experiences, needs, and challenges facing HF caregivers in Saudi Arabia to identify priority areas for developing tailored interventions. Materials and Methods: An exploratory descriptive qualitative study was conducted using semi-structured interviews with 12 caregivers (age range, 18–57; mean, 32). Interview data were analyzed thematically following Braun and Clarke’s approach. Results: Analysis of the interviews yielded four distinct overarching themes: role definition; coping and support; unmet caregiver needs; and emotional impact. Conclusion: Caregiving is a complex and life-altering role with many health and well-being implications. An in-depth understanding of HF caregivers’ experiences and needs provides valuable insight into how they can be supported in their roles to improve both caregivers’ and patients’ outcomes.