Conceptualizing a Rehabilitation ‘Model of Care’ for Improving the Quality of Life of People with Parkinson’s in India

Author:

Barretto Maria1,D’souza Nicole1

Affiliation:

1. Parkinson’s Disease and Movement Disorder Society, Mumbai, Maharashtra, India

Abstract

Abstract Given the rise in the elderly population and predicted increase in age-related diseases like Parkinson’s disease, as well as the treatment gaps in Low-and-Middle-Income Countries (LMICs), there is an urgent need to develop a culturally and socioeconomically viable Parkinson’s model of care that would be multidisciplinary, replicable, affordable, and accessible to those who need it the most. We present here an outline of a rehabilitation model of care, which incorporates a standardized group therapy format, community-based Parkinson’s Support Centers, collaboration with local stakeholders to ensure sustainability, and active engagement of People with Parkinson’s (PwPs) and caregivers (CGs) in rehabilitation programs. This model of care incorporates a unique 16-session multi-disciplinary community rehabilitation module for PwPs and CGs which is evidence-based, easily deliverable by non-medical facilitators, relevant to PwPs and CGs, adaptable to different groups, practical and beneficial, and effective in a group – format. This rehabilitation model of care, encompassing the multidisciplinary rehabilitation module, holds promise for implementation in LMICs due to its dynamic nature, cost-effectiveness, community-based approach and easy adaptability to telehealth platforms. We share our experience of developing the model and outline implications for practice and insights about community rehabilitation work in LMICs.

Publisher

Medknow

Subject

Neurology (clinical)

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