Eye Donation Counsellor Skill Evaluation Tool (EDC-SET): A step toward improved eye donation counseling

Abstract

Purpose: The expansion of the Hospital Corneal Retrieval Programme (HCRP) and the role of Eye Donation Counsellors (EDCs) have shown promising results in increasing donor cornea availability. To further enhance EDC competency and improve cornea availability for transplantation, the study proposes the Eye Donation Counsellor Skill Evaluation Tool (EDC‐SET). Key words: Competency assessment, corneal blindness, Eye Donation Counsellors (EDCs), eye health, Hospital Corneal Retrieval Programme (HCRP), skill evaluation. Methods: A competency framework for EDCs and a tool for evaluation of the competency level (EDC-SET) was designed, along with scripts for emulating realistic counselling scenarios. Independent assessors were trained on using EDC-SET and evaluated EDCs participating in role-plays based on the pre-designed scripts. EDCs were briefed a priori on the EDC-SET but not on the role play scripts which were used during evaluation. Results: We piloted the tool at a tertiary eye hospital, and it was found to capture EDC competency reliably. The study evaluated seven EDCs each assessed by two independent assessors. Conformity, kappa, and intraclass correlation coefficient (ICC) values were calculated to estimate the parameter‐wise reliability of the EDC‐SET. The results suggest that the scores from both assessors closely matched for most of the parameters, and overall, their ratings showed moderate agreement. The difficulty level of each parameter as assessed by the two assessors was also calculated. It was observed that most participants found “Initiation of the Case” and “Empathy and Emotional Support” challenging. However, “Body Language,” “Cultural Awareness,” and “Attentiveness to Family Dynamics” were perceived as relatively easy or not difficult by participants. Conclusion: Evaluation of EDCs using EDC-SET revealed the varying competency levels of EDCs and showed agreement on the evaluation between the assessors. Implementing the EDC‐SET could help standardise the mapping and measurement of the skill set of EDCs, thereby enhancing their performance and reducing corneal blindness in India.