Grief and bereavement support amidst palliative care in the paediatric intensive care unit

Author:

Charan Gopal Singh12,Kalia Raman12,Kumar Atul13,Sharma Karuna13

Affiliation:

1. Department of Nursing, SGRD College of Nursing, SGRD University of Health Sciences, Amritsar, Punjab, India

2. Department of Nursing, Saraswati Nursing Institute, Kurali, Punjab, India

3. Department of Nursing, Himalayan College of Nursing, Swami Rama Himalayan University, Dehradun, Uttarakhand, India

Abstract

ABSTRACT In paediatric intensive care units (PICUs), advanced medical care meets deeply emotional human experiences. This review examines grief and bereavement support in PICUs, emphasising its significance in extending palliative care beyond end-of-life scenarios. A comprehensive literature search of PubMed and Google Scholar from 2014 to 2023 yielded 50 relevant studies. The findings illustrate the unique challenges in PICUs, such as children’s limited communication abilities, parental distress and emotional burden on healthcare providers. Our review revealed the multifaceted nature of grief in PICUs, including anticipatory and complicated grief, and its profound impact on families and siblings of PICU patients. We identified diverse emotional, psychological, cultural and spiritual support needs that underscored the importance of continuous bereavement care and access to resources. Current support practices, including counselling, support groups, memorial services and interdisciplinary teamwork, are explored. Challenges such as resource limitations, healthcare providers’ emotional toll and communication barriers are discussed. The study also highlights emerging trends such as digital tools, innovative therapies and policy changes to enhance holistic, family-centred care in PICUs.

Publisher

Medknow

Reference49 articles.

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