Informed consent procedures in patients with an acute inability to provide informed consent: Policy and practice in the CENTER-TBI study

Author:

van Wijk Roel P.J.,van Dijck Jeroen T.J.M.,Timmers Marjolein,van Veen Ernest,Citerio Giuseppe,Lingsma Hester F.,Maas Andrew I.R.,Menon David K.,Peul Wilco C.,Stocchetti Nino,Kompanje Erwin J.O.,Åkerlund Cecilia,Amrein Krisztina,Andelic Nada,Andreassen Lasse,Anke Audny,Antoni Anna,Audibert Gérard,Azouvi Philippe,Azzolini Maria Luisa,Bartels Ronald,Barzó Pál,Beauvais Romuald,Beer Ronny,Bellander Bo-Michael,Belli Antonio,Benali Habib,Berardino Maurizio,Beretta Luigi,Blaabjerg Morten,Bragge Peter,Brazinova Alexandra,Brinck Vibeke,Brooker Joanne,Brorsson Camilla,Buki Andras,Bullinger Monika,Cabeleira Manuel,Caccioppola Alessio,Calappi Emiliana,Calvi Maria Rosa,Cameron Peter,Lozano Guillermo Carbayo,Carbonara Marco,Cavallo Simona,Chevallard Giorgio,Chieregato Arturo,Citerio Giuseppe,Ceyisakar Iris,Coburn Mark,Coles Jonathan,Cooper Jamie D.,Correia Marta,Čović Amra,Curry Nicola,Czeiter Endre,Czosnyka Marek,Dahyot-Fizelier Claire,Dark Paul,Dawes Helen,De Keyser Véronique,Degos Vincent,Corte Francesco Della,den Boogert Hugo,Depreitere Bart,Đilvesi Đula,Dixit Abhishek,Donoghue Emma,Dreier Jens,Dulière Guy-Loup,Ercole Ari,Esser Patrick,Ezer Erzsébet,Fabricius Martin,Feigin Valery L.,Foks Kelly,Frisvold Shirin,Furmanov Alex,Gagliardo Pablo,Galanaud Damien,Gantner Dashiell,Gao Guoyi,George Pradeep,Ghuysen Alexandre,Giga Lelde,Glocker Ben,Golubovic Jagoš,Gomez Pedro A.,Gratz Johannes,Gravesteijn Benjamin,Grossi Francesca,Gruen Russell L.,Gupta Deepak,Haagsma Juanita A.,Haitsma Iain,Helbok Raimund,Helseth Eirik,Horton Lindsay,Huijben Jilske,Hutchinson Peter J.,Jacobs Bram,Jankowski Stefan,Jarrett Mike,Jiang Ji-Yao,Johnson Faye,Jones Kelly,Karan Mladen,Kolias Angelos G.,Kompanje Erwin,Kondziella Daniel,Koraropoulos Evgenios,Koskinen Lars-Owe,Kovács Noémi,Kowark Ana,Lagares Alfonso,Lanyon Linda,Laureys Steven,Lecky Fiona,Ledoux Didier,Lefering Rolf,Legrand Valerie,Lejeune Aurelie,Levi Leon,Lightfoot Roger,Lingsma Hester,Maas Andrew I.R.,Castaño-León Ana M.,Maegele Marc,Majdan Marek,Manara Alex,Manley Geoffrey,Martino Costanza,Maréchal Hugues,Mattern Julia,McMahon Catherine,Melegh Béla,Menon David,Menovsky Tomas,Misset Benoit,Mulazzi Davide,Muraleedharan Visakh,Murray Lynnette,Negru Ancuta,Nelson David,Newcombe Virginia,Nieboer Daan,Nyirádi József,Olubukola Otesile,Oresic Matej,Ortolano Fabrizio,Palotie Aarno,Parizel Paul M.,Payen Jean-François,Perera Natascha,Perlbarg Vincent,Persona Paolo,Peul Wilco,Piippo-Karjalainen Anna,Pirinen Matti,Ples Horia,Polinder Suzanne,Pomposo Inigo,Posti Jussi P.,Puybasset Louis,Radoi Andreea,Ragauskas Arminas,Raj Rahul,Rambadagalla Malinka,Rhodes Jonathan,Richardson Sylvia,Richter Sophie,Ripatti Samuli,Rocka Saulius,Roe Cecilie,Roise Olav,Rosand Jonathan,Rosenfeld Jeffrey V.,Rosenlund Christina,Rosenthal Guy,Rossaint Rolf,Rossi Sandra,Rueckert Daniel,Rusnák Martin,Sahuquillo Juan,Sakowitz Oliver,Sanchez-Porras Renan,Sandor Janos,Schäfer Nadine,Schmidt Silke,Schoechl Herbert,Schoonman Guus,Schou Rico Frederik,Schwendenwein Elisabeth,Sewalt Charlie,Skandsen Toril,Smielewski Peter,Sorinola Abayomi,Stamatakis Emmanuel,Stanworth Simon,Stevens Robert,Stewart William,Steyerberg Ewout W.,Stocchetti Nino,Sundström Nina,Synnot Anneliese,Takala Riikka,Tamás Viktória,Tamosuitis Tomas,Taylor Mark Steven,Ao Braden Te,Tenovuo Olli,Theadom Alice,Thomas Matt,Tibboel Dick,Timmers Marjolein,Tolias Christos,Trapani Tony,Tudora Cristina Maria,Vajkoczy Peter,Vallance Shirley,Valeinis Egils,Vámos Zoltán,Van der Steen Gregory,van der Naalt Joukje,van Dijck Jeroen T.J.M.,van Essen Thomas A.,Van Hecke Wim,van Heugten Caroline,Van Praag Dominique,Vyvere Thijs Vande,van Wijk Roel P.J.,Vargiolu Alessia,Vega Emmanuel,Velt Kimberley,Verheyden Jan,Vespa Paul M.,Vik Anne,Vilcinis Rimantas,Volovici Victor,von Steinbüchel Nicole,Voormolen Daphne,Vulekovic Petar,Wang Kevin K.W.,Wiegers Eveline,Williams Guy,Wilson Lindsay,Winzeck Stefan,Wolf Stefan,Yang Zhihui,Ylén Peter,Younsi Alexander,Zeiler Frederick A.,Zelinkova Veronika,Ziverte Agate,Zoerle Tommaso

Funder

European Union

Hannelore Kohl Stiftung

OneMind

Integra LifeSciences Corporation

National Institute for Health Research

Publisher

Elsevier BV

Subject

Critical Care and Intensive Care Medicine

Reference47 articles.

1. Declaration of Helsinki - Ethical Principles for Medical Research Involving Human Subjects. 2018;Association WM,2019

2. Informed consent;Grady;N Engl J Med,2017

3. No 536/2014 of the European Parliament and of the Council of 16 April 2014 on clinical trials on medicinal products for human use, and repealing Directive 2001/20/EC OJ L158:1–76;Regulation (EU),2014

4. Decisions made by family members of patients with severe head injury;Mirr;ACCN,1991

5. ICU research: the impact of invasiveness on informed consent;Gigon;Intens Care Med,2013

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