Cystic fibrosis patient registries: A valuable source for clinical research
Author:
Publisher
Elsevier BV
Subject
Pulmonary and Respiratory Medicine,Pediatrics, Perinatology and Child Health
Reference55 articles.
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2. The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry;Knapp;Ann Am Thorac Soc,2016
3. The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement;Schechter;BMJ Qual Saf,2014
4. Epidemiology of CF: how registries can be used to advance our understanding of the CF population;Jackson;J Cyst Fibros,2017
5. An official American Thoracic Society research statement: comparative effectiveness research in pulmonary, critical care, and sleep medicine;Carson;Am J Respir Crit Care Med,2013
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