Data accuracy, consistency and completeness of the national Swiss cystic fibrosis patient registry: Lessons from an ECFSPR data quality project-Reference-Cited by-同舟云学术

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Data accuracy, consistency and completeness of the national Swiss cystic fibrosis patient registry: Lessons from an ECFSPR data quality project

Published:2023-11 Issue: Volume: Page:
ISSN:1569-1993
Container-title:Journal of Cystic Fibrosis
language:en
Short-container-title:Journal of Cystic Fibrosis

Author:

Wolf Lara^ORCID,Usemann Jakob^ORCID,Collaud Eugénie,Derkenne Marie-France,Fischer Reta^ORCID,Hensen Maxime,Hitzler Michael,Hofer Markus,Inci Demet,Irani Sarosh,Jahn Kathleen,Koutsokera Angela,Kusche Rachel,Kurowski Thomas,Latzin Philipp^ORCID,Lin Dagmar,Mioranza Laurence,Moeller Alexander^ORCID,Mornand Anne^ORCID,Mueller-Suter Dominik^ORCID,Murer Christian,Naehrlich Lutz,Plojoux Jérôme,Regamey Nicolas^ORCID,Rodriguez Romy,Rochat Isabelle^ORCID,Sauty Alain^ORCID,Schuurmans Macé,Semmler Michaela,Trachsel Daniel,Walter Anna-Lena,Jung Andreas^ORCID

Publisher

Elsevier BV

Subject

Pulmonary and Respiratory Medicine,Pediatrics, Perinatology and Child Health

Reference18 articles.

1. Zehn Jahre Neugeborenen-Screening auf zystische Fibrose in der Schweiz;Barben;Swiss Med Forum,2023

2. Clinical registries data quality attributes to support registry-based randomised controlled trials: a scoping review;Prang;Contemp Clin Trials,2022

3. Assessing real-world data quality: the application of patient registry quality criteria to real-world data and real-world evidence;Gliklich;Ther Innov Regul Sci,2020

4. Recommendations for improving the quality of rare disease registries;Kodra;Int J Environ Res Public Health,2018

5. The national cardiovascular data registry data quality program 2020. JACC state-of-the-art review;Malenka;JACC,2022

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