Epidemiology of CF: How registries can be used to advance our understanding of the CF population-Reference-Cited by-同舟云学术

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Epidemiology of CF: How registries can be used to advance our understanding of the CF population

Published:2018-05 Issue:3 Volume:17 Page:297-305
ISSN:1569-1993
Container-title:Journal of Cystic Fibrosis
language:en
Short-container-title:Journal of Cystic Fibrosis

Author:

Jackson Abaigeal D.,Goss Christopher H.

Funder

Vertex Innovation Award

Cystic Fibrosis Foundation

NIH

FDA

Publisher

Elsevier BV

Subject

Pulmonary and Respiratory Medicine,Pediatrics, Perinatology and Child Health

Reference66 articles.

1. Rare diseases act of 2002 United States,2002

2. European cystic fibrosis society standards of care: best practice guidelines;Smyth;J Cyst Fibros,2014

3. The Cystic Fibrosis Foundation Patient Registry. Design and methods of a national observational disease registry;Knapp;Ann Am Thorac Soc,2016

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