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Development and validation of a cystic fibrosis genetic knowledge questionnaire within the general population of the United States

  • Published:2013-09 Issue:5 Volume:12 Page:504-511
  • ISSN:1569-1993
  • Container-title:Journal of Cystic Fibrosis
  • language:en
  • Short-container-title:Journal of Cystic Fibrosis

Author:

Baker Hannah M.,Brown Roger L.,Tluczek Audrey

Funder

University of Wisconsin-Madison Department of Pediatrics, Genetics Counseling Program

Publisher

Elsevier BV

Subject

Pulmonary and Respiratory Medicine,Pediatrics, Perinatology and Child Health

Reference44 articles.

1. Newborn screening for cystic fibrosis: from experiment to routine procedure;Dankert-Roelse;CML Cyst Fibros,2012

2. Clinical practices for intermediate sweat tests following abnormal cystic fibrosis newborn screens;Nelson;J Cyst Fibros,2011

3. A survey of newborn screening for cystic fibrosis in Europe;Southern;J Cyst Fibros,2007

4. Newborn screening for cystic fibrosis: approved guideline;Farrell,2011

5. Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointment;Tluczek;Pediatrics,2005

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