1. FAQs about rare diseases,2021
2. Small data challenges of studying rare diseases;Mitani;JAMA Netw Open,2020
3. Public health and rare diseases: oxymoron No more, CDC prev;Valdez;Chronic Dis,2016
4. Data silos are undermining drug development and failing rare disease patients;Denton;Orphanet J Rare Dis,2021
5. Client registries: identifying and linking patients;McFarlane,2016