The role of medical students in advocacy for rare diseases – Experience from a Low- and Middle-Income Country (LMIC)

Author:

Qamar Javeria BilalORCID,Uzair Muhammad,Ahmed Shahnoor,Ganny Hamna,Jafri Lena,Kirmani Salman

Publisher

Elsevier BV

Reference24 articles.

1. About - Genetic and Rare Diseases Information Center. Accessed April 7, 2023. 〈https://rarediseases.info.nih.gov/about〉.

2. Consanguineous marriages and their association with women’s reproductive health and fertility behavior in Pakistan: secondary data analysis from demographic and health surveys, 1990–2018;Iqbal;BMC Women’s Health,2022

3. Clinical genetics and genomic medicine in Qatar;Al-Dewik;Mol. Genet. Genom. Med.,2018

4. Being the Pillar for Children with Rare Diseases- A Systematic Review on Parental Quality of Life;Boettcher,2021

5. Children with a rare congenital genetic disorder: a systematic review of parent experiences;von der Lippe;Orphanet J. Rare Dis.,2022

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