Rare disease care in Europe – Gaping unmet needs

Author:

Pakter Philippe

Publisher

Elsevier BV

Reference43 articles.

1. Spotlight on rare diseases;The Lancet Diabetes & Endocrinology;Lancet Diabetes Endocrinol.,2019

2. Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database;Nguengang Wakap;Eur. J. Hum. Genet.,2020

3. Why rare diseases are an important medical and social issue;Schieppati;Lancet,2008

4. EURORDIS, Achieving Holistic Person-Centred Care to Leave No One Behind – A Contribution to Improve the Everyday Lives of People Living with A Rare Disease and Their Families, 2019.

5. Directive 2011/24/EU of the European Parliament and of the Council of 9 March 2011 on the Application of Patients’ Rights in Cross-border Healthcare, OJ L 88, 4.4.2011.

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