The role of patient advocacy organisations in neuromuscular disease R&D – The case of the Dutch neuromuscular disease association VSN

Author:

Boon Wouter,Broekgaarden Ria

Publisher

Elsevier BV

Subject

Genetics (clinical),Neurology (clinical),Neurology,Pediatrics, Perinatology and Child Health

Reference19 articles.

1. Priority medicines for Europe and the World a “Public health approach to innovation”;Van Weely,2004

2. European Commission. Useful information on rare diseases from an EU perspective 2009. EU: Brussel; 2004.

3. EPPOSI. Report of the 7th EPPOSI workshop on partnering for rare diseases therapy development: positioning rare diseases on the healthcare agenda. Madrid, Spain; 2006.

4. WHO, Priority medicines for Europe and the World, World Health Organisation, Geneva; 2004, pp. 4–5.

5. RGO, Advies Orphan Drugs (weesgeneesmiddelen). 1998, Raad voor Gezondheidsonderzoek: Den Haag.

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