266th ENMC International Workshop: Remote delivery of clinical care and validation of remote clinical outcome assessments in neuromuscular disorders: A response to COVID-19 and proactive planning for the future. Hoofddorp, The Netherlands, 1–3 April 2022

Author:

Alfano Lindsay N.ORCID,James Meredith K.,Ramdharry Gita M.,Lowes Linda P.,Coats Julie,Corderí José,Costello Annette,Eagle Michelle,Elseed Maha,Gaeta Alessandra,Gordish-Dressman Heather,Davies Elin Haf,Human Anri,Knudsen Lone,Leffler Mindy,Levy Jennifer,Lilien Charlotte,Mancini Maria,Mayhew Anna,McGrattan Katlyn,Muni-Lofra Robert,Peck Allison,Peck Nathan,Prada Valeria,Pylarinou Hara,Rose Kristy,Werlauff Ulla

Publisher

Elsevier BV

Subject

Genetics (clinical),Neurology (clinical),Neurology,Pediatrics, Perinatology and Child Health

Reference42 articles.

1. Remote delivery of motor function assessment and training for clinical trials in neuromuscular disease: a response to the COVID-19 global pandemic;James;Front Genet,2021

2. Chartered Society of Physiotherapy. Final report: understanding the opportunities and challenges of remote physiotherapy consultations and rehabilitation during the Covid-19 pandemic. 2022 [cited 2023 15Jan]; Available from: https://www.csp.org.uk/system/files/documents/2022-02/csp_remote_pt_evaluation_final_report.pdf.

3. Utility of WhatsApp in healthcare provision and sharing of medical information with caregivers of children with neurodisabilities: experience from Sudan;Mohamed;Sudan J Paediatr,2021

4. U.S. Department of Health and Human Services: Food and Drug Administration. Conduct of clinical trials of medical products during the COVID-19 public health emergency: guidance for industry, investigators, and institutional review boards. 2020.

5. Reliability of the Charcot-Marie-Tooth functional outcome measure;Bray;J Peripher Nerv Syst,2020

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