Adolescents with Cancer and Occupational Deprivation in Hospital Settings: A Qualitative Study

Author:

Miralles Pedro Moruno1,Ramón Nieves Cedenilla2,Valero Sandra Aranda3

Affiliation:

1. Department of Nursing, Physiotherapy and Occupational Therapy, University of Castilla-La Mancha, Talavera de la Reina, Spain

2. Department of Psychology, University of Castilla-La Mancha, Talavera de la Reina, Spain

3. Association of Parents of Children with Intellectual Disabilities, Toledo, Spain

Abstract

Objective/Background The aim of this article was to analyze the needs of hospitalized adolescents with cancer in relation to the performance of meaningful activities as well as to explore the possible scenarios of occupational deprivation in hospital paediatric wards. Methods The study follows an ethnographical research approach using two techniques: participant observation and in-depth interviews, with constant comparison by data triangulation. Eight adolescents diagnosed with cancer aged between 15 years and 19 years (5 males and 3 females) were recruited from Toledo and Madrid in Spain. Results Five themes revealing the needs of adolescents with cancer in hospital environments were identified: (a) educational needs, (b) leisure needs, (c) physical space of the rooms, (d) interaction with medical personnel, and (e) lack of specific wards for adolescents. Conclusion The lack of variety and availability of educational activities and leisure, and the subsequent changes of the individual physical, social, and cultural environments could cause situations of occupational deprivation, and also affect the health and quality of life of the individuals.

Publisher

SAGE Publications

Subject

Occupational Therapy

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