Adolescents with Rett syndrome at critical care pathway junctures: Examining clinicians’ decision to initiate invasive long-term ventilation

Author:

Quirke Mary BrigidORCID,Alexander DeniseORCID,Cassidy Lorna,Walsh CathalORCID,Masterson KateORCID,Hill KatieORCID,Brenner MariaORCID

Funder

Horizon 2020

European Research Council

Publisher

Elsevier BV

Reference49 articles.

1. Towards a better diagnosis and treatment of Rett syndrome: a model synaptic disorder;Banerjee;Brain,2019

2. Rett Syndrome: a neurological disorder with metabolic components;Kyle;Open Bio,2018

3. Rett Syndrome,2022

4. Respiratory morbidity in Rett syndrome: an observational study;MacKay;Dev. Med. Child Neurol.,2018

5. Long-term non-invasive ventilation in children: current use, indications, and contraindications;Praud;Front Pediatr,2020

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