Parents' advice to healthcare professionals working with children who have spinal muscular atrophy
Author:
Funder
Gålö Foundation
Freja donation
Publisher
Elsevier BV
Subject
Clinical Neurology,General Medicine,Pediatrics, Perinatology, and Child Health
Reference29 articles.
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2. Review of spinal muscular atrophy (SMA) for prenatal and pediatric genetic counselors;Carré;J Genet Couns,2016
3. Mapping the differences in care for 5,000 spinal muscular atrophy patients, a survey of 24 national registries in North America, Australasia and Europe;Bladen;J Neurol,2014
4. Moving towards treatments for spinal muscular atrophy: hopes and limits;Wirth;Expert Opin Emerg Drugs,2015
5. Spinal muscular atrophy: diagnosis and management in a new therapeutic era;Arnold;Muscle Nerve,2015
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3. Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy;International Journal of Environmental Research and Public Health;2023-03-31
4. Children with a rare congenital genetic disorder: a systematic review of parent experiences;Orphanet Journal of Rare Diseases;2022-10-17
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