Atrofia muscular espinal y fracaso respiratorio. ¿Cómo actúan los pediatras de atención primaria en un escenario simulado?
Author:
Publisher
Elsevier BV
Subject
Pediatrics, Perinatology and Child Health
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2. Management of children with spinal muscular atrophytype1 in Australia;Tassie;J Paediatr Child Health.,2013
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1. Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs;Orphanet Journal of Rare Diseases;2022-07-19
2. Paediatric Residents and Fellows Ethics (PERFEct) survey: perceptions of European trainees regarding ethical dilemmas;European Journal of Pediatrics;2021-08-24
3. Caregiver burden in spinal muscular atrophy;REV MED CLIN CONDES;2020
4. Sobrecarga del cuidador de pacientes con atrofia muscular espinal;Revista Médica Clínica Las Condes;2020-05
5. Decision-Making Regarding Ventilator Support in Children with SMA Type 1—A Cross-Sectional Survey among Physicians;Neuropediatrics;2019-08-13
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