1. EMA. 2000. https://www.ema.europa.eu/en/committees/committee-orphan-medicinal-products-comp access August 21th, 2022.
2. Health French Ministry https://solidarites-sante.gouv.fr/IMG/pdf/pnmr_3_v25-09pdf.pdf access August 21th, 2022.
3. DéfiScience network. https://www.defiscience.fr/vous-reperer/ access August 21th, 2022.
4. Center R-DHRE. http://epilepsie-robertdebre.aphp.fr/centre-de-reference-des-epilepsies-rares/.
5. Internet use by parents of children with rare conditions: findings from a study on parents' web information needs;Nicholl;J Med Internet Res,2017