Patient and Surrogate Postenrollment Perspectives on Research Using the Exception From Informed Consent: An Integrated Survey-Reference-Cited by-同舟云学术

Patient and Surrogate Postenrollment Perspectives on Research Using the Exception From Informed Consent: An Integrated Survey

Published:2020-09 Issue:3 Volume:76 Page:343-349
ISSN:0196-0644
Container-title:Annals of Emergency Medicine
language:en
Short-container-title:Annals of Emergency Medicine

Author:

Scicluna Victoria M.,Biros Michelle,Harney Deneil K.,Jones Elizabeth B.,Mitchell Andrea R.,Pentz Rebecca D.,Silbergleit Robert,Speight Candace D.,Wright David W.,Dickert Neal W.

Funder

National Institutes of Health

NINDS

National Center for Advancing Translational Sciences

National Institute of Child Health and Human Development

Patient Centered Outcomes Research Institute

Publisher

Elsevier BV

Subject

Emergency Medicine

Reference19 articles.

1. Food and Drug Administration. 21CFR50.24 Exception from informed consent requirements for emergency research. 1996.

2. Hemming J. Watchdog wants answers over adrenaline trial that family claims dying mum was “guinea pig” for February 23, 2018. Available at: https://www.dailypost.co.uk/news/north-wales-news/paramedic2-adrenaline-trial-guinea-pig-14327749. Accessed May 13, 2020.

3. A randomized trial of epinephrine in out-of-hospital cardiac arrest;Perkins;N Engl J Med,2018

4. Mannix A. Ketamine study at Hennepin Healthcare suspended after criticism from politicians. June 26, 2018. Available at: https://www.startribune.com/ketamine-study-at-hennepin-healthcare-suspended-after-criticism-from-politicians-minneapolis-police-sedate/486507021. Accessed May 13, 2020.

5. Is emergency research without initial consent justified? the consent substitute model;Largent;Arch Intern Med,2010

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1. Evolving Understanding of Patients’ Experiences in Acute Care Trials Without Prospective Consent*;Critical Care Medicine;2024-04-15

2. Perspectives of ICU Patients on Deferred Consent in the Context of Post-ICU Quality of Life: A Substudy of a Randomized Clinical Trial*;Critical Care Medicine;2024-01-05

3. What have we learned from the RAMPART and ESETT randomized controlled trials?;Epilepsy & Behavior;2023-04

4. Trials using deferred consent in the emergency setting: a systematic review and narrative synthesis of stakeholders’ attitudes;Trials;2022-05-16

5. Exploring the inclusion of under-served groups in trials methodology research: an example from ethnic minority populations’ views on deferred consent;Trials;2021-09-03