Factors that influence parents’ experiences with results disclosure after newborn screening identifies genetic carrier status for cystic fibrosis or sickle cell hemoglobinopathy-Reference-Cited by-同舟云学术

Factors that influence parents’ experiences with results disclosure after newborn screening identifies genetic carrier status for cystic fibrosis or sickle cell hemoglobinopathy

Published:2013-03 Issue:3 Volume:90 Page:378-385
ISSN:0738-3991
Container-title:Patient Education and Counseling
language:en
Short-container-title:Patient Education and Counseling

Author:

Collins Jenelle L.,La Pean Alison,O’Tool Faith,Eskra Kerry L.,Roedl Sara J.,Tluczek Audrey,Farrell Michael H.

Publisher

Elsevier BV

Subject

General Medicine

Reference33 articles.

1. National Newborn Screening and Genetics Resource Center, National Newborn Screening Status Report; 2011. Available from: http://genes-r-us.uthscsa.edu/nbsdisorders.pdf [cited 31.03.11].

2. Genetic counseling and risk communication services of newborn screening programs;Farrell;Arch Pediat Adol Med,2001

3. Psychological effects of false-positive results in cystic fibrosis newborn screening: a two-year follow-up;Beucher;J Pediatr,2010

4. Physicians’ knowledge of genetics and genetic tests;Hofman;Acad Med,1993

5. Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice;Kai;Health Technol Assess,2009

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