Children and young people's experiences of living with rare diseases: An integrative review-Reference-Cited by-同舟云学术

Children and young people's experiences of living with rare diseases: An integrative review

Published:2023-01 Issue: Volume:68 Page:e16-e26
ISSN:0882-5963
Container-title:Journal of Pediatric Nursing
language:en
Short-container-title:Journal of Pediatric Nursing

Author:

Somanadhan Suja,O'Donnell Ryan,Bracken Shirley,McNulty Sandra,Sweeney Alison,O'Toole Doris,Rogers Yvonne,Flynn Caroline,Awan Atif,Baker Mona,O'Neill Aimee,McAneney Helen,Gibbs Lisa,Larkin Philip,Kroll Thilo

Funder

Children's Health Ireland at Crumlin

Publisher

Elsevier BV

Subject

Pediatrics

Reference51 articles.

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4. Psychosocial considerations for the child with rare disease: A review with recommendations and calls to action;Belzer;Children,2022

5. “People are all about appearances”: A focus group of teenagers with Moebius syndrome;Bogart;Journal of Health Psychology,2014

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4. The diagnostic odyssey for children living with a rare disease – Caregiver and patient perspectives: A narrative review with recommendations;Rare;2024

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