The patient view on the ERN programme: Share, care, cure, and pathways

Author:

Aminoff Dalia,Bartezzati Rita Serena,Schwarzer Nicole,Harkin Claire,Tyler Kate,Santis Anna De,Osborne John,Manzie Kenneth,Cornes Robert

Publisher

Elsevier

Reference14 articles.

1. Centralisation of Paediatric surgical procedures in the United Kingdom;Durkin;Paediat Surg Int,2017

2. French connection between specialised and routine pediatric surgical care;Peycelon;Paediat Surg Int,2017

3. Patient engagement in healthcare: a preliminary set of measures to evaluate patients engagement in the ERNs;Marinello;Rare Dis Orphan Drugs J,2021

4. RarERN Path: a methodology towards the optimization of patients’ care pathways in rare and complex diseases developed within the European Reference Networks;Talarico;Orphanet J Rare Dis,2020

5. Non-financial conflicts of interest: contribution to a surgical dilemma by the European Reference Networks for Rare Diseases;Schmiedeke;Paediat Surg Int,2019

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