Recommendations to improve the patient experience and avoid bias when prenatal screening/testing-Reference-Cited by-同舟云学术

Recommendations to improve the patient experience and avoid bias when prenatal screening/testing

Published:2023-04 Issue:2 Volume:16 Page:101401
ISSN:1936-6574
Container-title:Disability and Health Journal
language:en
Short-container-title:Disability and Health Journal

Author:

Meredith Stephanie^ORCID,Brackett Scotti,Diaz Keith M.,Freeman Kathleen G.,Huggins Erin,Khan Hadia,Leach Mark W.,Levitz Mitchell,Michie Marsha,Onufer Janet,Skotko Brian G.,Smith Leah,Nicole White A.,Waller Tracy,Ayers Kara

Funder

US Department of Health and Human Services Administration for Community Living

Publisher

Elsevier BV

Subject

Public Health, Environmental and Occupational Health,General Medicine

Reference26 articles.

1. Receiving the initial Down syndrome diagnosis: a comparison of prenatal and postnatal parent group experiences;Nelson Goff;Intellect Dev Disabil,2013

2. New insights into the formation and duration of flashbulb memories: evidence from medical diagnosis memories;May;Appl Cogn Psychol,2020

3. Physicians' perceptions of people with disability and their health care: study reports the results of a survey of physicians' perceptions of people with disability;Iezzoni;Health Aff (Millwood),2021

4. Parental experiences after prenatal diagnosis of fetal abnormality;Hodgson;Semin Fetal Neonatal Med,2018

5. Evaluation of patient education materials: the example of circulating cell free DNA testing for aneuploidy;Kloza;J Genet Couns,2015

Cited by 8 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Parent‐reported genetic counselor adherence to the NSGC practice resource for communicating a potential prenatal diagnosis: Impact on the Down syndrome diagnosis experience;Journal of Genetic Counseling;2024-07-19

2. Supporting patient decision-making in non-invasive prenatal testing: a comparative study of professional values and practices in England and France;BMC Medical Ethics;2024-03-21

3. NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families;Children;2024-02-15

4. The impact of implicit and explicit bias about disabilities on parent experiences and information provided during prenatal screening and testing;Disability and Health Journal;2024-01

5. Ethical challenges in autism genomics: Recommendations for researchers;European Journal of Medical Genetics;2023-09