Using social media for patient-reported outcomes: A study of genital appearance and sexual function in adult bladder exstrophy patients
Author:
Publisher
Elsevier BV
Subject
Urology,Pediatrics, Perinatology, and Child Health
Reference14 articles.
1. Sexual function in men born with classic bladder exstrophy: a norm related study;Castagnetti;J Urol,2010
2. Short and long-term quality of life after reconstruction of bladder exstrophy in infancy: preliminary results of the QUALEX (QUAlity of Life of bladder EXstrophy) study;Jochault-Ritz;J Pediatr Surg,2010
3. Health-related quality of life and mental health in adolescents and adults operated for bladder exstrophy and epispadias;Taskinen;Urology,2015
4. A survey to assess body and self-image in individuals with bladder exstrophy: a call for psychosocial support;Pennison;J Urol,2013
5. Long-term sexual health outcomes in men with classic bladder exstrophy;Baumgartner;BJU Int,2017
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1. The exstrophy experience: A national survey assessing urinary continence, bladder management, and oncologic outcomes in adults;Journal of Pediatric Urology;2023-04
2. Sexual health outcomes after penile reconstruction in the exstrophy–epispadias complex;Journal of Pediatric Urology;2022-12
3. Quality of life of children operated for bladder exstrophy;Progrès en Urologie;2022-02
4. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review;Genetics in Medicine;2021-12
5. Long-term urological and gynecological outcomes following complete primary repair in females with bladder exstrophy;Journal of Pediatric Urology;2021-10
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