Consent recommendations for research and international data sharing involving persons with dementia-Reference-Cited by-同舟云学术

Consent recommendations for research and international data sharing involving persons with dementia

Published:2018-07-03 Issue:10 Volume:14 Page:1334-1343
ISSN:1552-5260
Container-title:Alzheimer's & Dementia
language:en
Short-container-title:Alzheimer's & Dementia

Author:

Thorogood Adrian¹,Mäki‐Petäjä‐Leinonen Anna²,Brodaty Henry³,Dalpé Gratien¹,Gastmans Chris⁴,Gauthier Serge⁵,Gove Dianne⁶,Harding Rosie⁷,Knoppers Bartha Maria¹,Rossor Martin⁸,Bobrow Martin⁹,

Affiliation:

1. Centre of Genomics and PolicyMcGill UniversityMontrealCanada

2. Faculty of Social Sciences and Business StudiesLaw SchoolUniversity of Eastern FinlandJoensuuFinland

3. Faculty of MedicineUniversity of New South WalesSydneyAustralia

4. Interfaculty Centre for Biomedical Ethics and LawKU LeuvenLeuvenBelgium

5. McGill Centre for Studies in AgingMcGill UniversityMontrealCanada

6. Alzheimer EuropeLuxembourg CityLuxembourg

7. Birmingham Law SchoolUniversity of BirminghamBirminghamUnited Kingdom

8. UCL Institute of NeurologyUniversity College LondonLondonUnited Kingdom

9. Department of Medical GeneticsUniversity of CambridgeCambridgeUnited Kingdom

Funder

Genome Canada

Government of Canada

Publisher

Wiley

Subject

Psychiatry and Mental health,Cellular and Molecular Neuroscience,Geriatrics and Gerontology,Neurology (clinical),Developmental Neuroscience,Health Policy,Epidemiology

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1016/j.jalz.2018.05.011

Reference78 articles.

1. Comparative approaches to genetic discrimination: chasing shadows?;Joly Y.;Trends Genet,2017

2. A federated ecosystem for sharing genomic, clinical data

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