The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research-Reference-Cited by-同舟云学术

The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research

Published:2022-02 Issue:2 Volume:24 Page:410-418
ISSN:1098-3600
Container-title:Genetics in Medicine
language:en
Short-container-title:Genetics in Medicine

Author:

Norstad Matthew,Outram Simon,Brown Julia E.H.,Zamora Astrid N.,Koenig Barbara A.,Risch Neil,Norton Mary E.,Slavotinek Anne,Ackerman Sara L.

Funder

National Human Genome Research Institute

National Institutes of Health

Publisher

Elsevier BV

Subject

Genetics (clinical)

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5. Enhancing diversity to reduce health information disparities and build an evidence base for genomic medicine;Hindorff;Pers Med,2018

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1. Secondary use of genomic data: patients’ decisions at point of testing and perspectives to inform international data sharing;European Journal of Human Genetics;2024-03-25

2. Patients' perspectives related to ethical issues and risks in precision medicine: a systematic review;Frontiers in Medicine;2023-06-15

3. “I Have Fought for so Many Things”: Disadvantaged families’ Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing;AJOB Empirical Bioethics;2023-05-10

4. Lessons learned and recommendations for data coordination in collaborative research: The CSER consortium experience;Human Genetics and Genomics Advances;2022-07