What outcomes are important to patients with mild cognitive impairment or Alzheimer's disease, their caregivers, and health‐care professionals? A systematic review

Author:

Tochel Claire1,Smith Michael1,Baldwin Helen12,Gustavsson Anders345,Ly Amanda1,Bexelius Christin5,Nelson Mia1,Bintener Christophe6,Fantoni Enrico7,Garre‐Olmo Josep8,Janssen Olin9,Jindra Christoph10,Jørgensen Isabella F.11,McKeown Alex2,Öztürk Buket12,Ponjoan Anna813,Potashman Michele H.14,Reed Catherine15,Roncancio‐Diaz Emilse7,Vos Stephanie9,Sudlow Cathie1,

Affiliation:

1. Centre for Medical Informatics, Usher Institute of Population Health Sciences and Informatics, University of EdinburghEdinburghUK

2. University of OxfordOxfordUK

3. Quantify ResearchStockholmSweden

4. Department of Neurobiology, Care Sciences & SocietyKarolinska InstituteStockholmSweden

5. F. Hoffmann‐La Roche Ltd.BaselSwitzerland

6. Alzheimer EuropeLuxembourg CityLuxembourg

7. GE HealthcareLife SciencesAmershamUK

8. Girona Biomedical Research Institute (IdibGI)GironaCataloniaSpain

9. Department of Psychiatry & NeuropsychologySchool for Mental Health & Neuroscience, Alzheimer Center Limburg, Maastricht UniversityMaastrichtthe Netherlands

10. Department of PsychiatryUniversity of OxfordOxfordUK

11. Novo Nordisk Foundation Center for Protein ResearchFaculty of Health & Medical SciencesUniversity of CopenhagenCopenhagenDenmark

12. Department of Clinical EpidemiologyAarhus University HospitalAarhusDenmark

13. Vascular Health Research Group (ISV‐Girona), Institut Universitari d'Investigació en Atenció Primària Jordi Gol (IDIAP Jordi Gol)BarcelonaCataloniaSpain

14. BiogenCambridgeMAUSA

15. Eli Lilly and Company LimitedWindleshamUK

Funder

Innovative Medicines Initiative

European Federation of Pharmaceutical Industries and Associations

EFPIA

Publisher

Wiley

Subject

Psychiatry and Mental health,Clinical Neurology

Reference46 articles.

1. M.J.Prince.World Alzheimer Report 2015: the global impact of dementia: an analysis of prevalence incidence cost and trends.Alzheimer's Dis Int 2015;1–87

2. Defeating Alzheimer's disease and other dementias: a priority for European science and society

3. Alzheimer's disease

4. Outcomes Assessment in Clinical Trials of Alzheimer's Disease and its Precursors: Readying for Short‐term and Long‐term Clinical Trial Needs;Posner H.;Innov Clin Neurosci,2017

5. The ADAS-cog in Alzheimer's disease clinical trials: psychometric evaluation of the sum and its parts

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