1. Patient participation as dialogue: setting research agendas;Abma;Health Expect.,2010
2. Elements of morphology: introduction;Allanson;Am. J. Med. Genet.,2009
3. Empowerment of patients: lessons from the rare diseases;Ayme;Lancet,2008
4. Report on Initiatives and Incentives in the Field of Rare Diseases of the European Union Committee of Experts on Rare Diseases. July 2010,2009
5. Networking for rare diseases: a necessity for Europe;Ayme;Bundesgesundheitsbl Gesundheitsforsch Gesundheitsschutz,2007