ERN BOND: The key European network leveraging diagnosis, research, and treatment for rare bone conditions

Author:

Casareto LorenaORCID,Appelman-Dijkstra Natasha M.,Brandi Maria Luisa,Chapurlat Roland,Cormier-Daire Valérie,Hamdy Neveen A.T.,Heath Karen E.,Horn Joachim,Mantovani Giovanna,Mohnike Klaus,Sousa Sérgio Bernardo,Travessa André,Wekre Lena Lande,Zillikens M. Carola,Sangiorgi Luca

Publisher

Elsevier BV

Reference24 articles.

1. Orphan Medicine Incentives: How to Address the Unmet Needs of Rare Disease Patients by Optimizing the European Orphan Medicinal Product Landscape Guiding Principles and Policy Proposals by the European Expert Group for Orphan Drug Incentives (OD Expert Group)

2. Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic;Brizola;Orphanet J. Rare Dis.,2020

3. Amending Implementing Decision 2014/287/EU Setting Out Criteria for Establishing and Evaluating European Reference Networks and Their Members and for Facilitating the Exchange of Information and Expertise on Establishing and Evaluating Such Networks,2019

4. Directive 2011/24/EU of the European Parliament and of the Council of 9 March 2011 on the application of patients' rights in cross-border healthcare, https://eur-lex.europa.eu/legal-content/EN/TXT/HTML/?uri=CELEX:32011L0024.

5. ERN BOND Clinical Patient Management System, https://ernbond.eu/cpms/.

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