Funder
European Union's Second Health Programme
Newcastle University
Istituto Superiore di Sanità
European Organisation for Rare Diseases
Institut National de la Santé et de la Recherche Médicale
Ministry of Social Affairs and Health
Instituto Nacional de Saúde Dr. Ricardo Jorge
Johann Wolfgang-Universität Frankfurt am Main
Centro de Investigación Biomédica en Red
Subject
Genetics(clinical),Genetics,General Medicine
Reference9 articles.
1. The European Union Committee of Experts on Rare Diseases: three productive years at the service of the rare disease community;Aymé;Orphanet J. Rare Dis.,2014
2. Rare diseases in ICD11: making rare diseases visible in health information systems through appropriate coding;Aymé;Orphanet J. Rare Dis.,2015
3. Centres of Expertise and Quality of Care for Rare Diseases, January 2015 http://www.eucerd.eu/wp-content/uploads//2015/03/WP7_SummaryReport_CentresExpertiseRD_2015.pdf.
4. Commission Communication, Rare Diseases Europe's Challenge http://ec.europa.eu/health/ph_threats/non_com/docs/rare_com_en.pdf.
5. Council Recommendation (2009/C 151/02) of 8 June on an action in the field of rare diseases http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ: C:2009:151:0007:0010:EN: PDF.
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