1. Advance care planning and parent-reported end-of-life outcomes in children, adolescents, and young adults with complex chronic conditions;DeCourcey;Crit Care Med,2019
2. Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State, 1980-1997;Feudtner;Pediatrics,2000
3. Centers for Disease Control and Prevention, National Center for Health Statistics. National Vital Statistics System, Mortality 1999-2020 on CDC WONDER Online Database, released in 2021. Data are from the Multiple Cause of Death Files, 1999-2020, as compiled from data provided by the 57 vital statistics jurisdictions through the Vital Statistics Cooperative Program. http://wonder.cdc.gov/ucd-icd10.html , Accessed July 31, 2024 .
4. End-of-life practices among tertiary care PICUs in the United States: a multicenter study;Meert;Pediatr Crit Care Med,2015
5. Factors associated with age affect willingness to engage in early end-of-life communication using electronic health record-tethered patient portals;Bose-Brill;J Am Geriatr Soc,2016