Measuring health-related quality of life in Duchenne muscular dystrophy: Current perspectives and recommendations
Author:
Funder
PTC Therapeutics Inc
Publisher
Elsevier BV
Subject
Neurology (clinical),Neurology
Reference46 articles.
1. Quality-of-life measures in chronic diseases of childhood;Eiser;Health Technol. Assess.,2001
2. Assessment of health-related quality of life in children and adolescents: an integrative review;Spieth;J. Pediatr. Psychol.,1996
3. Patient-reported outcome measures (PROMs) as proof of treatment efficacy;Kluzek;BMJ Evid Based Med.,2022
4. Transferability of economic evaluations across jurisdictions: ISPOR good research practices task force report;Drummond;Value Health,2009
5. “Be an ambassador for change that you would like to see”: a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease;Ambrosini;Orphanet. J. Rare Dis.,2019
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1. Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany;Quality of Life Research;2024-05-16
2. Effects of a neuropsychosocial teleassistance intervention on social cognition and health-related quality of life of pediatric patients with neuromuscular diseases;Journal of Pediatric Psychology;2024-03-07
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