Concern about Justifying the Release of Genomic Data as a Civil Right

Author:

Dreyfus Jennifer C.,Sobel Mark E.

Publisher

Elsevier BV

Subject

Genetics (clinical),Genetics

Reference10 articles.

1. HIPAA’s individual right of access to genomic data: Reconciling safety and civil rights;Evans;Am. J. Hum. Genet.,2018

2. Genetic Information Nondiscrimination Act of 2008, Pub. L. No. 110–233, 122 Stat. 881 (2008).

3. Social Security Act, title XI, part C, § 1171(4), codified at 42 U.S.C. § 1320d(4).

4. Civil Rights Act of 1964, 42 U.S.C. §§ 2000a et seq.

5. Disruptive influences on research in academic pathology departments: Proposed changes to the common rule governing informed consent for research use of biospecimens and to rules governing return of research results;Sobel;Am. J. Pathol.,2017

Cited by 4 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study;Global Bioethics;2021-01-01

2. Perceptions towards research data sharing: A qualitative study of Nigerian academics;Malaysian Journal of Library & Information Science;2020-12-27

3. Return of Individual Research Results;The American Journal of Pathology;2020-05

4. Response to Dreyfus and Sobel;The American Journal of Human Genetics;2018-07

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