It's part of who I am: The impact of congenital heart disease on adult identity and life experience
Author:
Funder
NHLBI
Cambia Health Foundation
Publisher
Elsevier BV
Subject
General Medicine
Reference25 articles.
1. Psychosocial functioning and quality of life in adults with congenital heart disease and heart failure;Kovacs;Heart Fail Clin,2014
2. Development of a novel adult congenital heart disease-specific patient-reported outcome metric;Cedars;J Am Heart Assoc,2020
3. Adult Congenital Heart Disease-Coping and REsilience (ACHD-CARE): rationale and methodology of a pilot randomized controlled trial ☆;Kovacs;Contemp Clin Trials,2015
4. Development of an international research agenda for adult congenital heart disease nursing;Goossens;Eur J Cardiovasc Nurs,2013
5. Clinical research priorities in adult congenital heart disease;Cotts;Int J Cardiol,2014
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1. Rationale and design of a randomized controlled clinical trial of a resilience-building intervention in adults with congenital heart disease;Contemporary Clinical Trials;2024-10
2. Quality of Life and Well‐Being in Adults With Fontan Physiology: Findings From the Australian and New Zealand Fontan Registry Quality of Life Study;Journal of the American Heart Association;2024-08-06
3. Impact of Social Determinants of Health on Self-Perceived Resilience: An Exploratory Study of Two Cohorts of Adults with Congenital Heart Disease;Congenital Heart Disease;2024
4. Illness identity and well-being in congenital heart disease: Directionality of effects and developmental trajectories.;Health Psychology;2023-11-02
5. Psychological interventions for depression in adolescent and adult congenital heart disease;Cochrane Database of Systematic Reviews;2023-10-03
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