Data sharing in the context of community-engaged research partnerships

Author:

Emmons Karen M.ORCID,Mendez SamuelORCID,Lee Rebekka M.,Erani DianaORCID,Mascioli Lynette,Abreu Marlene,Adams Susan,Daly James,Bierer Barbara E.

Funder

National Institutes of Health

National Cancer Institute

National Center for Advancing Translational Sciences

Publisher

Elsevier BV

Subject

History and Philosophy of Science,Health (social science)

Reference49 articles.

1. After Havasupai litigation, Native Americans wary of genetic research;Am. J. Med. Genet.,2010

2. Responsible practices for data sharing;Alter;Am. Psychol.,2018

3. How should we think about clinical data ownership?;Ballantyne;J. Med. Ethics,2020

4. Everyday ethics in community-based participatory research;Banks;Contemporary Social Science,2013

5. The ethics of secondary data analysis: considering the application of Belmont principles to the sharing of neuroimaging data;Brakewood;Neuroimage,2013

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