Measuring quality of life in epidermolysis bullosa in Mexico: Cross-cultural validation of the Hispanic version of the Quality of Life in Epidermolysis Bullosa questionnaire
Author:
Publisher
Elsevier BV
Subject
Dermatology
Reference5 articles.
1. Quality of life evaluation in epidermolysis bullosa (EB) through the development of the QOLEB questionnaire: an EB-specific quality of life instrument;Frew;Br J Dermatol,2009
2. The classification of inherited epidermolysis bullosa (EB): report of the third international consensus meeting on diagnosis and classification of EB;Fine;J Am Acad Dermatol,2008
3. Guidelines for the process of cross-cultural adaptation of self-report measures;Beaton;Spine,2000
4. Literature review of methods to translate health-related quality of life questionnaires for use in multinational clinical trials;Acquadro;Value Health,2008
5. Culture, meaning, and personality in Mexico and in the United States;Diaz-Loving,1999
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1. “Quality of Life in Epidermolysis Bullosa” and “Epidermolysis Bullosa Burden of Disease”: Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnaires;Italian Journal of Pediatrics;2024-04-19
2. Translation, cultural adaptation and validation of the German Quality of Life in Epidermolysis Bullosa (QOLEB) questionnaire;Journal of Health Psychology;2024-02-18
3. “Quality of Life in Epidermolysis Bullosa” and “Epidermolysis Bullosa Burden of Disease”: Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnaires;2024-02-06
4. Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa;Orphanet Journal of Rare Diseases;2023-09-04
5. Transcultural Validation of a Spanish Version of the Quality of Life in Epidermolysis Bullosa Questionnaire;International Journal of Environmental Research and Public Health;2022-06-09
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