Current Trends and Outcomes in Cellular Therapy Activity in the United States, Including Prospective Patient-Reported Outcomes Data Collection in the Center for International Blood and Marrow Transplant Research Registry

Author:

Cusatis RachelORCID,Litovich Carlos,Feng Zhongyu,Allbee-Johnson Mariam,Kapfhammer Miranda,Mattila Deborah,Akinola IdayatORCID,Phelan RachelORCID,Broglie LarisaORCID,Auletta Jeffery J.ORCID,Steinert Patricia,Bolon Yung-Tsi,Akhtar Othman,Bloomquist Jenni,Chen Min,Devine Steven M.ORCID,Bupp CaitrinORCID,Hamadani MehdiORCID,Hengen Mary,Jaglowski Samantha,Kaur Manmeet,Kuxhausen Michelle,Lee Stephanie J.ORCID,Moskop AmyORCID,Page Kristin M.,Pasquini Marcelo C.,Rizzo Doug,Saber Wael,Spellman Stephen R.,Stefanski Heather E.,Tuschl Eileen,Yusuf Rafeek,Zhan Keming,Flynn Kathryn E.ORCID,Shaw Bronwen E.

Funder

Health Resources and Services Administration

Office of Naval Research

National Institute of Allergy and Infectious Diseases

National Cancer Institute

National Heart Lung and Blood Institute

Publisher

Elsevier BV

Reference13 articles.

1. US Food and Drug Administration. Patient-reported outcome measures: use in medical product development to support labeling claims. Available at:https://www.fda.gov/regulatory-information/search-fda-guidance-documents/patient-reported-outcome-measures-use-medical-product-development-support-labeling-claims. Accessed January 10, 2022.

2. Quality of Life: The Assessment, Analysis and Interpretation of Patient-reported Outcomes;Fayers,2013

3. Comparison between patient-reported and clinician-observed symptoms in oncology;Xiao;Cancer Nurs,2013

4. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008;Cella;J Clin Epidemiol,2010

5. Adding centralized electronic patient-reported outcome data collection to an established international clinical outcomes registry;Cusatis;Transplant Cell Ther,2022

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