<p>Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©)</p>-Reference-Cited by-同舟云学术

Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©)

Published:2020-04 Issue: Volume:Volume 14 Page:705-715
ISSN:1177-889X
Container-title:Patient Preference and Adherence
language:en
Short-container-title:PPA

Author:

Kaiser Karen^ORCID,Yount Susan E^ORCID,Martens Christa E,Webster Kimberly A^ORCID,Shaunfield Sara,Sparling Amy,Peipert John Devin^ORCID,Cella David^ORCID,Rottinghaus Scott T,Donato Bonnie MK^ORCID,Wells Richard,Tomazos Ioannis

Publisher

Informa UK Limited

Subject

Health Policy,Pharmacology, Toxicology and Pharmaceutics (miscellaneous),Social Sciences (miscellaneous),Medicine (miscellaneous)

Reference54 articles.

1. Impact of eculizumab treatment on paroxysmal nocturnal hemoglobinuria: a treatment versus no-treatment study

2. Narrative Review: Paroxysmal Nocturnal Hemoglobinuria: The Physiology of Complement-Related Hemolytic Anemia

3. Historical aspects of paroxysmal nocturnal haemoglobinuria: ‘defining the disease’

4. Paroxysmal nocturnal haemoglobinuria: long-term follow-up and prognostic factors

5. Clinical Course and Flow Cytometric Analysis of Paroxysmal Nocturnal Hemoglobinuria in the United States and Japan

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1. Phase 3 randomized COMMODORE 1 trial: Crovalimab versus eculizumab in complement inhibitor‐experienced patients with paroxysmal nocturnal hemoglobinuria;American Journal of Hematology;2024-06-25

2. Phase 3 randomized COMMODORE 2 trial: Crovalimab versus eculizumab in patients with paroxysmal nocturnal hemoglobinuria naive to complement inhibition;American Journal of Hematology;2024-06-17

3. Paroxysmal nocturnal hemoglobinuria: Review of the patient experience and treatment landscape;Blood Reviews;2023-11

4. Literature Review on Health Emigration in Rare Diseases—A Machine Learning Perspective;International Journal of Environmental Research and Public Health;2023-01-30

5. Managing Fatigue in Patients with Paroxysmal Nocturnal Hemoglobinuria: A Patient-Focused Perspective;Journal of Blood Medicine;2022-06