The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making
Author:
Publisher
Informa UK Limited
Subject
Health Policy,Pharmacology, Toxicology and Pharmaceutics (miscellaneous),Social Sciences (miscellaneous),Medicine (miscellaneous)
Reference44 articles.
1. Establishing the Prevalence and Prevalence at Birth of Hemophilia in Males
2. WFH Guidelines for the Management of Hemophilia, 3rd edition
3. Hemophilia treatment in 2021: Choosing the”optimal” treatment using an integrative, patient-oriented approach to shared decision-making between patients and clinicians
4. Haemophilia and Joint Disease: Pathophysiology, Evaluation, and Management
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1. A 360-degree perspective on adeno-associated virus (AAV)-based gene therapy for haemophilia: Insights from the physician, the nurse and the patient;Orphanet Journal of Rare Diseases;2024-05-13
2. Shared decision‐making related to treatment of haemophilia: A scoping review of influential factors and available support tools;Haemophilia;2024-04-29
3. The benefits of gene therapy in people with haemophilia;Journal of Viral Hepatitis;2024-04
4. Barriers to gene therapy, understanding the concerns people with haemophilia have: an exigency sub-study;Orphanet Journal of Rare Diseases;2024-02-10
5. A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board;The Journal of Haemophilia Practice;2024-01-01
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