Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy
Author:
Publisher
Informa UK Limited
Subject
General Medicine
Reference32 articles.
1. WFH Guidelines for the Management of Hemophilia, 3rd edition
2. Health status and health-related quality of life associated with hemophilia
3. Associations of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and health care provider services: results in adults with hemophilia in the HERO study
4. Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders
5. Self-reported prevalence, description and management of pain in adults with haemophilia: methods, demographics and results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study
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1. The evolving landscape of gene therapy for congenital severe hemophilia: a 2024 state of the art;Bleeding, Thrombosis and Vascular Biology;2024-09-04
2. Exploring the relationship between condition severity and health-related quality of life in people with haemophilia A across Europe: a multivariable analysis of data from the CHESS II study;Health and Quality of Life Outcomes;2024-07-29
3. Three-year outcomes of valoctocogene roxaparvovec gene therapy for hemophilia A;Journal of Thrombosis and Haemostasis;2024-07
4. Outcome measures in hemophilia: current and future perspectives;Expert Review of Hematology;2024-06-19
5. Strategies to target and genetically modify the liver sinusoid;Sinusoidal Cells in Liver Diseases;2024
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