Healthcare access and health equity: intricate challenges for rare diseases
Author:
Abstract
Funder
Universität Zürich
Publisher
SMW Supporting Association
Subject
General Medicine
Reference14 articles.
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2. von der Lippe C, Diesen PS, Feragen KB. Living with a rare disorder: a systematic review of the qualitative literature. Mol Genet Genomic Med. 2017 Nov;5(6):758–73. 10.1002/mgg3.315
3. World Health Organization. Health equity. https://www.who.int/health-topics/health-equity#tab=tab_1)
4. Gaviglio AM, Skinner MW, Lou LJ, Finkel RS, Augustine EF, Goldenberg AJ. Gene-targeted therapies: towards equitable development, diagnosis, and access. Am J Med Genet C Semin Med Genet. 2023 Mar;193(1):56–63. 10.1002/ajmg.c.32032
5. Farooq F, Mogayzel PJ, Lanzkron S, Haywood C, Strouse JJ. Comparison of US Federal and Foundation Funding of Research for Sickle Cell Disease and Cystic Fibrosis and Factors Associated With Research Productivity. JAMA Netw Open. 2020 Mar;3(3):e201737. 10.1001/jamanetworkopen.2020.1737
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