What Are Parents’ Experiences With Their Child’s Hearing Aid Use in the First 5 Years?

Abstract

Objectives: Parents are required to make informed choices for their children regarding the use of hearing amplification after hearing loss has been diagnosed. If parents choose a listening and spoken language approach for their child where the development of age appropriate spoken language is the parents’ goal, then the early fitting and frequent use of hearing aids is crucial. Within the framework of family centered care, parents have the ultimate responsibility for supporting their child’s hearing aid use. However, few studies have focused on parents’ insights regarding the aspects that shape hearing aid use in the early years. Thus the aim of this study was to explore parents’ firsthand experiences with their child’s hearing aid use in the first 5 years. Understanding parents’ insights will help improve service provision to optimize outcomes for children with hearing loss. Design: The study utilized a prospective qualitative design to explore parents’ firsthand experiences with their child’s hearing aid use. Purposive sampling was used to recruit 12 parents who participated in semi-structured interviews. Parents’ responses were analyzed using thematic analysis. Results: Three overarching themes were conceptualized, namely: (a) towards hearing aids - journey into the wilderness; (b) adjusting to hearing aids - it’s the journey, not the destination; and (c) support for my child’s hearing aid use - it’s not where you are going, it’s who you have beside you. Each theme was further divided into categories and subcategories. Conclusions: This study identified that parents have much to contribute to service providers’ understanding regarding the aspects that shape consistent hearing aid use in young children. Parents shared many insights such as the emotionally daunting nature of the first few months post hearing loss confirmation, the influence of family support, and the importance of building connections and understanding about hearing loss and hearing aid use within their social networks. Based on these insights, the authors provide recommendations for clinical best practice that draw upon key principles of family centered care. They consist of practical suggestions including strategic support to overcome less optimal hearing aid use and ways to facilitate parent support within their familial and communal networks.