Coalition for Global Hearing Health Hearing Care Pathways Working Group: Guidelines for Clinical Guidance for Readiness and Development of Evidence-Based Early Hearing Detection and Intervention Programs

Author:

Yoshinaga-Itano Christine12,Carr Gwen3,Davis Adrian3456,Ching Teresa Y. C.789,Chung King10,Clark Jackie11,Harkus Samantha12,Kuan Meei-ling13,Garg Suneela14,Balen Sheila Andreoli15,O’Leary Shannon16

Affiliation:

1. University of Colorado, Boulder, Colorado, USA

2. University of Witwatersrand, Johannesburg, South Africa

3. UCL Ear Institute London, London, United Kingdom

4. London School of Economics, London, United Kingdom

5. Imperial College London, London, United Kingdom

6. Anglia Ruskin University, Cambridge, United Kingdom

7. Macquarie University, Sydney, New South Wales, Australia

8. NextSense Institute, Sydney, New South Wales, Australia

9. University of Queensland, Brisbane, Queensland, Australia

10. MGH Institute of Health Professions, Department of Communication Sciences and Disorders, Charlestown, Massachusetts, United States

11. University of Texas, Dallas, Texas, USA

12. National Acoustics Laboratories, Sydney, Australia

13. National Women’s League Hearing Health Foundation, Taipei, Taiwan

14. Maulana Azad Medical College, New Delhi, India

15. Speech, Language and Hearing Department, Federal University of Rio Grande do Norte, Natal, Rio Grande do Norte, Brazil

16. HearInAfrica, Cape Town, South Africa.

Abstract

Editor’s Note: The following article discusses the timely topic Clinical Guidance in the areas of Evidence-Based Early Hearing Detection and Intervention Programs. This article aims to discuss areas of services needed, guidance to countries/organizations attempting to initiate early hearing detection and intervention systems. Expert consensus and systematic/scoping reviews were combined to produce recommendations for evidence-based clinical practice. In Ear and Hearing, our long-term goal for the Point of View article is to stimulate the field’s interest in and to enhance the appreciation of the author’s area of expertise. Hearing is an important sense for children to develop cognitive, speech, language, and psychosocial skills. The goal of universal newborn hearing screening is to enable the detection of hearing loss in infants so that timely health and educational/therapeutic intervention can be provided as early as possible to improve outcomes. While many countries have implemented universal newborn hearing screening programs, many others are yet to start. As hearing screening is only the first step to identify children with hearing loss, many follow-up services are needed to help them thrive. However, not all of these services are universally available, even in high-income countries. The purposes of this article are (1) to discuss the areas of services needed in an integrated care system to support children with hearing loss and their families; (2) to provide guidance to countries/organizations attempting to initiate early hearing detection and intervention systems with the goal of meeting measurable benchmarks to assure quality; and (3) to help established programs expand and improve their services to support children with hearing loss to develop their full potential. Multiple databases were interrogated including PubMed, Medline (OVIDSP), Cochrane library, Google Scholar, Web of Science and One Search, ERIC, PsychInfo. Expert consensus and systematic/scoping reviews were combined to produce recommendations for evidence-based clinical practice. Eight essential areas were identified to be central to the integrated care: (1) hearing screening, (2) audiologic diagnosis and management, (3) amplification, (4) medical evaluation and management, (5) early intervention services, (6) family-to-family support, (7) D/deaf/hard of hearing leadership, and (8) data management. Checklists are provided to support the assessment of a country/organization’s readiness and development in each area as well as to suggest alternative strategies for situations with limited resources. A three-tiered system (i.e., Basic, Intermediate, and Advanced) is proposed to help countries/organizations at all resource levels assess their readiness to provide the needed services and to improve their integrated care system. Future directions and policy implications are also discussed.

Publisher

Ovid Technologies (Wolters Kluwer Health)

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