Update on the evaluation and management of dysphagia in sporadic inclusion body myositis

Author:

Garand Kendrea L. (Focht)1,Malandraki Georgia A.2,Dimachkie Mazen M.3

Affiliation:

1. Department of Communication Science and Disorders, University of Pittsburgh, Pittsburgh, Pennsylvania

2. Department of Speech, Language, & Hearing Sciences, Purdue University, West Lafayette, Indiana

3. Department of Neurology, University of Kansas Medical Center, Kansas City, Kansas, USA

Abstract

Purpose of review Dysphagia is a common symptom of sporadic inclusion body myositis (IBM), affecting disease trajectory and patient quality-of-life. Despite this, it is considerably understudied. The purpose of this review is to summarize current evidence related to the evaluation and management of dysphagia in IBM. We highlight a patient case involving a multidisciplinary management approach, and we encourage continued exploration of exercises for delaying progression and improving impairments in patients with IBM and dysphagia. Recent findings Recent investigations confirm that dysphagia in IBM is a debilitating and complex symptom that warrants timely evaluation and management. Further, they highlight the lack of validation of standardized swallowing-related metrics specifically for IBM and the limited evidence supporting a consensus of management approaches. Small scale research and clinical anecdotal data support a multidisciplinary and multipronged patient-centered approach, including rehabilitative exercise protocols, for dysphagia management in IBM. Summary A paucity exists in the literature to effectively guide clinical decision-making for patients with IBM and dysphagia. Given this, it is our belief that a careful multidisciplinary and multipronged patient-centered approach is critical for dysphagia management in IBM. Prospective, longitudinal research on the underlying mechanisms of swallowing dysfunction using advanced and validated swallowing-related outcome measures is urgently needed.

Publisher

Ovid Technologies (Wolters Kluwer Health)

Subject

Otorhinolaryngology,Surgery

Reference29 articles.

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